some good news..... and some not so good news.....

Ok.... we went to see Dr. Rope a geneticist up at Primary Childrens Med Center. Well he ran some tests, reviewed her blood work and ultra sound and bone scan and felt Amelie does not have Beckwith-Wiedemann syndrome. YAY!! thats the good news!! The bad news is..... she needs surgery. her tongue seems to be growing right along with her, so basically in a couple of months she will have tongue reduction surgery. Her tongue blocks her airway when she lays down on her back. This explains the apnea issues when she was newborn. So they will reduce her tongue,and give her a larger airway. Anyways, we go see the ENT doctor in a few weeks for a consult and to schedule surgery. She will be in the hospital on a ventilator for a couple of days or until the swelling of the tongue goes down after surgery. Poor baby, poor mama!! All in all, she is fine,and whatever comes.... we take it in stride!! Love my baby girl!